Myasthenia Gravis In Times Of Coronavirus – Minimize The Risk
We know by now that while most cases of the Coronavirus are mild and highly manageable (as many as 82% by March 8), the new virus is most dangerous for the elderly and those with compromised immunity. This is why it’s perfectly understandable that even as sensible opinion leaders caution us to be alert but not anxious, Myasthenia gravis patients have more reason to worry than most.
Today at FindMeCure we’d like to use this Patient Safety Awareness Week to talk about MG and the risk of Coronavirus and hopefully, put your mind at ease by giving you some actionable, sound advice backed by trustworthy sources on how to protect yourself (and those around you).
We’re not here to tell you to “stay calm” because we do realise the risk of complications is higher if you take immunosuppressive drugs – which many MG patients do. We also know that respiratory issues are already a concern for you. In order to take the best possible measures neither underestimating the risk nor panicking is going to help.
Yes, you do need to be a bit more careful than the average person. But exactly how careful is careful enough?
First thing first, you might be tired of hearing it but proper handwashing goes a long way. How exactly is it going to help? Second to respiratory droplets (someone coughing or sneezing less than 6 feet away from you), touching contaminated surfaces is the fastest way to spread the virus.
Even though the virus doesn’t live long on hard surfaces (researchers still speculate about how long but it’s closer to hours rather than days), touching surfaces in public places – think benches, doorknobs, handles on public transportation, etc. – is a big no-no. Especially if you then touch your face. Wash your hands for more than 20 seconds with warm water and soap before you touch your face or have a meal. Hand sanitizer is not as effective unless it has more than 60% alcohol in it – but some simple soap is perfectly enough.
Speaking of surfaces in public, you can avoid dealing with cash for some time as well and pay with card or your phone when possible. Keep in mind that your phone needs to be sanitized as well. Think about all the surfaces you touch every day – do you then immediately wash your hands before fishing for your phone to change the song or accept a call? Unlikely.
While staying home is your safest bet until governments have a better grasp on the issue, it might be bad for your mental health. If you choose to go out, remember that outdoors is better than indoors and crowds are to be avoided.
If your drug is administered in a hospital, it might be a good idea to call beforehand to check if it’s safe there for someone with your condition. They might be able to administer your treatment at home or at least provide you with accurate information (like if there are cases of Coronavirus there and what precautions are being taken) and measures for you to minimize your risk. It’s always worth voicing your concerns to your doctor.
Get your flu shot if you can. If your doctor is on board and agrees it would be a good idea in your case get your flu shot – preferably at a pharmacy, instead of at the hospital (if this is an option in your country). We want to address the people asking – no, the flu shot, unfortunately, cannot prevent Coronavirus. What it can do is protect you against another possible complication – it will be easier on your immune system if it doesn’t have to fight the flu as well.
Work from home if possible and if this is simply not an option – let your coworkers know about your condition. The people you spend the most time with should know to be careful and postpone even important face-to-face meetings if they’re feeling unwell.
Be assured that efforts are being made to find both a vaccine and a reliable treatment. In fact, there are as many as 16 clinical trials already available on our platform ranging in purpose from observation to prevention to treatment. Researchers are looking into stem cell therapy, the anti-HIV medication Kaletra, drugs used for the treatment of malaria and hepatitis as well as remdesivir, a drug originally developed for Ebola, as possible avenues. So far remdesivir seems to be the most promising treatment but as the world is awaiting the results from the clinical trials, knowledge about the Coronavirus is growing and the numbers are changing.
Make sure you get your information from reliable sources and stay cautious and vigilant but don’t allow pessimistic thoughts to overtake you. You can read more about practical precautions at FlattenTheCurve (and the NHS for people in the UK), though not all of the information is going to be applicable to you. Your case truly is different and while the general guidelines don’t take into account how scary it can be to take immunosuppressive drugs or otherwise have compromised immunity in the middle of a pandemic they can still offer useful and actionable information.
It’s truly very difficult in this busy life to listen news on Television, therefore
I simply use internet for that purpose, and get the most up-to-date news.
Good to know! We recommend only trusting reliable sources.
Two things are infinite: the CORONAVIRUS and human stupidity. 2 DINGE SIND UNENDLICH DAS CORONAVIRUS UND DIE MENSCHLICHE DUMMHEIT
should I try reducing my immune suppressant drug or increasing it as a best defense against Corona Virus?
Please talk to your doctor before making any changes to your treatment – they are your best source of information.
If I only take mestinon and I’m in remission does this mean I’m not at increased risk of Coronavirus?? Thank you
Hi, Mathew! This is an excellent question to ask your doctor – you should really discuss your worries about Covid-19 with a member of your treatment team. We hope you get good news, stay safe!
Hello, is there any information at all regarding COVID-19’s impact on a Myasthenia Gravis patient such as myself, a 24yr old male who is in remission via a full vertical sternotomy and thymus gland removal? I have been in remission for a few years, if I were to catch this virus, how much of an increased risk would I be at? Could it even cause my disorder to enter a relapse? Thank you so much!
Hi, Logan! We found this article that you might find helpful: https://myastheniagravisnews.com/information-about-covid-19-for-myasthenia-gravis-patients/
However, it might be a good idea in your case to address your concerns with your doctor. We’re sending you good wishes, stay safe!
Recommending getting the flu shot is about the most ridiculous thing I’ve ever read on here. The first time I ever got the flu shot I went into a full blown MG episode. 3 weeks!
Hi, I’m sorry about your experience Mac! I just want to clarify, however, that we do not recommend getting the flu shot – we recommend talking to your doctor or treatment team about it. Only get the flu shot if your doctor believes it will benefit you.
Coronavirus Mask – How to make your Coronavirus face mask
Im Adell so I work at Amazon and I Have MG and I told my sup about how my body shut down to this MG and my lungs went out on me 3 times and blind and speech went out and I told my account manager as well and its like they don’t care and I don’t feel like I should be out side I keep getting sick and I want to keep care off my self can I file edd without back lash
Hi Adell, what you are going through is heartbreaking. Is there someone in your life you can address this with? Perhaps a co-worker, your doctor or someone else who might be able to offer advice? I hope everything works out for the best, your health is a priority. Take care.
Hi,i just found a way to make your own hand sanitizer…enjoy
quick question. I have mg and I also work in a nursing home.. would it be wise for me to work or stay home?
Is there a higher risk or worse outcome when the Thymus is removed? My husband has a full thymectomy year ago. I do not know how much can be this affect when the immun system is attack by a new virus such as Covid19.
I am sorry but I will repeat my comment. I forgot to ask for notifications. I wonder If there is a higher risk or worse outcome when a person has complete removal from the Thymus? My husband had it years ago and is not using any kind of immunsupresives. I do not know how much can be this affect when the immun system when is attack by a new virus such as Covid19.