Holden is one of these kids whose parents are brave enough to take a risk both for his own benefit and for the children outside of clinical trials who nevertheless might need the drug in development. Holden is fighting Crohn’s disease - a kind of inflammatory bowel disease, which causes abdominal pain, severe, sometimes bloody diarrhea, weight loss, and malnutrition.…
Although the Pain Awareness Month already passed, we at FindMeCure want to reserve a central place for this topic on our blog. There have been many talks on chronic pain in the recent years as it turns out that hundreds of well-known conditions, such as Rheumatoid Arthritis, Ulcerative Colitis, Migraine and so many more, cause long-term pain. There is one…
In 2010 Kim’s family heard the words that changed their life forever: “Your daughter has cancer”. Back then, Maya was a four-year-old kid with a life filled with happiness, ballet, arts, sports. Maya was full of life. The nightmare started with pain While running outside, Maya’s knee hurt but nothing was found by her paediatrician. A couple of months…
Meet Deirdre Ryan Deirdre Ryan is a Governing Body Member of Chronic Pain Ireland and a Fibromyalgia and Rheumatoid Arthritis patient herself. We got in touch during the preparations of a joint webinar on Chronic Pain and access to new treatments, powered by FindMeCure Foundation and Chronic Pain Ireland. We were amazed to hear how she found her own way…
In the middle of the last century sociologist Erving Goffman came up with the theory of social performativity - the concept that, as Shakespeare said some four centuries prior, we are all actors and the world is our stage. We perform a variety of roles, claims Goffman, in our day-to-day lives: the roles of a parent, a student, an employee,…
" I felt afraid to leave the house - what if I can’t remember where I live? Does anybody else battle debilitating brain fog while on thyroid replacement therapy? When is it just “brain fog” and when is something you need to see a doctor for?" This is what a patient, currently going through thyroid hormone replacement therapy, shares about their fears, experiences,…
