The MG story of a patient advocate You know that we at FindMeCure are constantly eager to talk about people with various conditions who have inspired us because they have turned their patient journey into a way to help others. It’s now time to share Allison’s story as we truly admire her passion and dedication to make a difference to…
A story through the eyes of a patient (Infographic) I know how it feels to be given an “almost-death” sentence. Yes, I know exactly what I said. I said it this way because that is exactly how it feels when you are given a diagnosis of a chronic illness without a known cure. When I got my diagnosis, it came…
Holden is one of these kids whose parents are brave enough to take a risk both for his own benefit and for the children outside of clinical trials who nevertheless might need the drug in development. Holden is fighting Crohn’s disease - a kind of inflammatory bowel disease, which causes abdominal pain, severe, sometimes bloody diarrhea, weight loss, and malnutrition.…
Although the Pain Awareness Month already passed, we at FindMeCure want to reserve a central place for this topic on our blog. There have been many talks on chronic pain in the recent years as it turns out that hundreds of well-known conditions, such as Rheumatoid Arthritis, Ulcerative Colitis, Migraine and so many more, cause long-term pain. There is one…
In 2010 Kim’s family heard the words that changed their life forever: “Your daughter has cancer”. Back then, Maya was a four-year-old kid with a life filled with happiness, ballet, arts, sports. Maya was full of life. The nightmare started with pain While running outside, Maya’s knee hurt but nothing was found by her paediatrician. A couple of months…
Meet Deirdre Ryan Deirdre Ryan is a Governing Body Member of Chronic Pain Ireland and a Fibromyalgia and Rheumatoid Arthritis patient herself. We got in touch during the preparations of a joint webinar on Chronic Pain and access to new treatments, powered by FindMeCure Foundation and Chronic Pain Ireland. We were amazed to hear how she found her own way…
