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Your journey
1What's a trial
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More info
You can access this
clinical trial
if you have
Stargardt Disease
and you are
over 6
years old
This is an observational trial.
You are contributing to medical knowledge about your condition.
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The purpose

While a fair amount of clinical data on Stargardt disease type 1 (STGD1) have been published, very little is known about Stargardt disease type 4 (STGD4). The ProgStar 04 study is an important opportunity to leverage the infrastructure, clinical trials sites, methods, and central reading center of the ProgStar program to investigate the progression of STGD4 and will help to establish patient cohorts worldwide for future clinical trials.
Tris trial is registered with FDA with number: NCT02410122. The sponsor of the trial is Johns Hopkins University and it is looking for 15 volunteers for the current phase.
Official trial title:
The Natural History of the Progression of Atrophy Secondary to Stargardt Disease Type 4 (STGD4): A Prospective Longitudinal Observational Study of Stargardt Disease Type 4, a PROM1- Related Macular Dystrophy