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Your journey
1What's a trial
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More info
You can access this
clinical trial
if you have
Huntington Disease or Huntington's Disease
and you are
This is an observational trial.
You are contributing to medical knowledge about your condition.
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The purpose

This is a multi-centre, multi-national, prospective, observational study of Huntington's disease (HD) with a control group of volunteers to: - obtain natural history data on many HD mutation carriers and individuals who are part of an HD family - relate phenotypical characteristics (genetic modifiers / wet and dry biomarkers) - expedite identification and recruitment of participants for clinical trials - develop and validate sensitive and reliable outcome measures for detecting onset and change over the natural course of premanifest and manifest HD which may also be potential outcome measures for use in future clinical trials and clinical care - plan for future research studies

Locations near you

Unfortunately, there are no recruiting locations near you. Please check the list with all locations below.
Tris trial is registered with FDA with number: NCT01590589. The sponsor of the trial is European Huntington's Disease Network and it is looking for 10000 volunteers for the current phase.
Official trial title:
REGISTRY - an Observational Study of the European Huntington's Disease Network (EHDN)