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More info
You can access this
clinical trial
if you have
Charcot Marie Tooth Disease
and you are
over 8
years old
-
This is an observational trial.
You are contributing to medical knowledge about your condition.
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The purpose

It is necessary for outcome measures to accurately reflect the state of health of a person in order for clinical trials to show benefit. The most commonly used outcome measure for Charcot Marie Tooth Disease (CMT) is the CMT Neuropathy Score, which uses cutoffs of points designated as mild (0-10 points), moderate (11-20) or severe (21-36). These terms are arbitrary. This study is looking to base mild, moderate, and severe on what both people affected with CMT and those who provide for people with CMT consider appropriate.

Locations near you

Unfortunately, there are no recruiting locations near you. Please check the list with all locations below.
Tris trial is registered with FDA with number: NCT01455623. The sponsor of the trial is University of Iowa and it is looking for 291 volunteers for the current phase.
Official trial title:
Development and Validation of a Disability Severity Index for Charcot Marie Tooth Disease