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More info
You can access this
clinical trial
if you have
Facioscapulohumeral Muscular Dystrophy
and you are
-
This is an observational trial.
You are contributing to medical knowledge about your condition.
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The purpose

This study is an observational study that aims to advance our knowledge on infantile onset FSHD. The study will include 50 participants of all ages who have presented with symptoms of FSHD between birth and 10 years of age. Study participation will involve a single day of assessments at one of the participating CINRG centers (to include physical exam, cognitive testing, eye exam, hearing test, strength testing and speech evaluations). The procedures may be split over additional days for scheduling purposes.

Locations near you

Unfortunately, there are no recruiting locations near you. Please check the list with all locations below.
Tris trial is registered with FDA with number: NCT01437345. The sponsor of the trial is Cooperative International Neuromuscular Research Group and it is looking for 53 volunteers for the current phase.
Official trial title:
A Multicenter Collaborative Study on the Clinical Features, Expression Profiling, and Quality of Life of Infantile Onset Facioscapulohumeral Muscular Dystrophy