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Value of Genetic Counseling and Testing for Patients Who Would Like to Know More About Their Personal Risk of AMD (NCT03024424)

The goals of this study are: To assess the impact of genetic testing based on how it alters behaviors, to assess the utility of serum biomarker measurement in combination with genetic testing, to assess the utility of genetic counseling in personal analysis of risk for age-related macular degeneration (AMD), and to assess the impact of presymptomatic genetic testing for choroidal neovascularization (CNV).
  • Behavioral: Early disclosure
    • Behavioral: Late disclosure
      Ages eligible for Study
      20 Years to 59 Years
      Genders eligible for Study
      All
      Accepts Healthy Volunteers
      Accepts Healthy Volunteers
      Inclusion Criteria:
      • Caucasian (this particular genetic test is only validated in Caucasians) Participants can have a positive family history of AMD but this is not necessary.
      Exclusion Criteria:
      • Individuals with a personal history of AMD are not eligible. Non-caucasian individuals are not eligible. Employees of the Moran Eye Center are not eligible.

      1 locations

      United States (1)
      • University of Utah John A. Moran Eye Center
        Salt Lake City, Utah, United States, 84132
      Status:
      active not recruiting
      Type:
      Interventional
      Phase:
      -
      Start:
      29 February, 2016
      Updated:
      25 April, 2017
      Participants:
      200
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